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2010 MEETINGS & EVENTS CALENDAR


Presentation by USC Communication Sciences Students
Students from USC Communication Sciences
Left to Right - Lauren Rindskopt, Abbey Glick, Victoria Aiello,
Kendra Pickerill, and Britt Lassiter

April 19, 2009 Meeting
Photo by Dennis Baker
CALENDARS OF MEETINGS & EVENTS
Note: All calendar information and events are subject to change.
Please visit often for the recent and newest updates.


2017 ---- 2016
2015 ---- 2014 ---- 2013 ---- 2012
2011 ---- 2010 ---- 2009 ---- 2008



Some of the events listed are PODCASTs - WEBCASTs - and WEBINARs.
For an explanation of these web / internet forms of delivering information click here


INDEX


January 17, 2010
MEETING

Picture of Red Parkinson Tulip
Topic: A Family's Legacy of Parkinson's Disease ~ "'My Father, My Brother, and Me"

PBS Frontline correspondent Dave Iverson discuss his film, 'My Father, My Brother, and Me,' in which he explores the latest medical research and political debate surrounding Parkinson's Disease -- an illness that has affected several members of his family, including Iverson himself.

Iverson has been a television and radio producer for over 30 years. Two years ago, he took on a very personal project, a film about Parkinson's disease. Iverson first learned about Parkinson's in the fall of 1971. That was when he got a letter from his mom telling him that his father had been diagnosed with the disease. Twenty years later, Iverson's brother was diagnosed with Parkinson's. And in the summer of 2002, Iverson himself began experiencing familiar symptoms; it would be two years before his diagnosis became official, but he knew what the likely outcome would be. For Iverson, Parkinson's is a personal story, but the disease is much more than a family saga. It's the second most common neurological disorder there is, and it raises intriguing questions for science and our aging society. His film, "My Father, My Brother and Me", explores all of these angles.

Speaker: Video Presentation and Discussion Afterwards

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Happy 25th Birthday!Birthday Cake

February 4, 2010
SEMINAR
Topic: RESPITE SOLUTIONS 2010: Inspiring faith communities

RESPITE = regular breaks from caregiving for a person of any age, who has special needs

Speaker: Invited keynote speaker = Leeza Gibbons
Sponsor: South Carolina Respite Coalition
Time: 8:30 am – 3:15 pm
Where: St. Andrews Baptist Church Columbia, South Carolina
Information: www.screspitecoalition.org
Phone:  803-935-5027 or 1-866-345-6786 (toll free)

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February 17, 2010
SYMPOSIUM
Free Winter’s Educational Symposium

Time:  8:30 am – 12:30 pm
Speaker: Dr. Romulo Fuentes - Duke University Hospital - Spinal Cord Stimulation for PD
Speaker: Dr. Reza Bolouri - Charlotte Alzheimer's Memory Center - Lewy Body Dementia
Speaker: Dr. Mark Hirsch - Carolinas Healthcare System / Carolinas Rehabilitation - Exercise as Medicine for folks with Parkinson's
Location: Carolina Christian Academy – 1850 Kershaw Camden Hwy (Hwy521-S), Lancaster, SC
Cost: FREE
Register / Info: Sid Wanzer – (cell)  252-573-8181 – (office) 803-285-3277   Email swanzer05@gmail.com
Sponsors: Parkinson Association of the Carolinas, Alzheimer's Association, Carolina Christian Academy, J. Marion Sims and Turner Family Foundations

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February 21, 2010
MEETING
Picture of Red Parkinson Tulip

Speaker: Lisa Smith, Seniors Helping Seniors

Topic: Home Safety Evaluation and Overview of Seniors Helping Seniors
www.seniormatters.net/index.html

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March 18, 2010
EXPO
Event: South Carolina Assistive Technology Expo 2010

What:  Exhibits and workshops about the latest assistive technology for people with disabilities and age-related limitations. 
Date: Thursday, March 18, 2010
Time: 9 am – 4 pm
Place: Marriott Spartanburg at Renaissance Park -
Address: 299 North Church Street, Spartanburg, SC  29306
Phone: (864) 596-1211 
Cost: FREE and OPEN TO THE PUBLIC ~ No Pre-Registration Necessary

Check the Expo Web page regularly for updates!  http://www.sc.edu/scatp/expo/expo10.html

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March 21, 2010
MEETING
Picture of Red Parkinson Tulip
Topic: OPEN FORUM & DISCUSSION

Subject: IS ANYBODY LISTENING?
Do you wonder if anybody is really listening to you when you try to communicate?Parkinson’s disease (PD) can affect communications in many ways.  The ability to speak and communicate can diminish because of the disease itself, or because of the medications used to control PD symptoms.  Our open forum will be a discussion about communication difficulties with family, friends, and others; and sharing personal tips/techniques on how to manage them.

At our open forum meetings we usually start with a theme or topic, and go from there. Our members have an opportunity to share their own experiences; ask questions of each other; and help each other by proving solutions that they have for various issues, concerns, problems, etc.  Our members tell us they learn about things at the open forum meetings, that they can't find in anywhere else, because they are learning directly from other Parkinson patients and their caregivers.

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March 25, 2010
FUND RAISING EVENT
Event: Fund Raiser

Where: "Pavlov's Bar" located at 2000 Greene Street in Columbia
Featured Band Music: "Friday Night Fix", which has a large college following in the area
What: "Pavlov's Bar" will contribute a percentage of their drink sales for the night AND the band, "Friday Night Fix", has graciously offered to donate the door cover charge
Cost: There is a $3 door cover charge for the featured band
Time: All night and the band, "Friday Night Fix", will go on around 10 p.m.
Note: This event is primarily for college students.

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April 1, 2010
PROCLAMATION
CEREMONY

PARKINSON AWARENESS PROCLAMATION CEREMONY AT THE SC STATE HOUSE ~ COLUMBIA, SOUTH CAROLINA


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Photo of people waiting before the South Carolina Parkinson's Awareness Proclamation Ceremony


April 8, 2010
FUND RAISING EVENT

Event: Fund Raiser

Where: "Which Wich?" Sandwich Shop on 928 Main Street, Columbia SC
What: The "Which Wich?" Sandwich Shop will contribute a percentage of their evening sales from 6:00 to 10:00 p.m. to all patrons who say "I am here to support the Parkinson's Fundraiser" at the register.
Time: 6:00 to 10:00 p.m.
Contact: Sarah Crook and Shannon Parry at parkinsons.fund raising@yahoo.com You must say at the register --- "I am here to support the Parkinson's Fundraiser"

Bring your family, friends, neighbors, anyone...!


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April 11, 2010
FUND RAISING EVENT
CPSG WALK and RAFFLE - Fund Raiser for Research & Education

Where: Irmo High School Track, 6671 St. Andrew's Road, Irmo, SC 29212 (Columbia / Midlands Area)
Registration: 2:00 pm
Walk: 3:00 pm
Raffle: 4:00 pm


Pre-Registration Fee: $15/Individual + T-Shirt Guaranteed
Registration at Event: $15/Individual + T-Shirt As Long As They Last


Click Here For More Information and Registration Form Walk Contacts : Sarah Crook (865) 384-4497 and Shannon Parry (770) 310-0736
Email: parkinsons.fundraising@yahoo.com


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April 18, 2010
MEETING
Picture of Red Parkinson Tulip
NATIONAL PARKINSON'S AWARENESS MONTH
Topic:  Past – Present – and Future

Past –
Meet our special guests, who were the founding members of our support group.  They will share with us what it was like to have Parkinson’s Disease 25 years ago – what the treatments were – what it was like living with Parkinson’s – and more.  There have been many changes and advancements in 25 years!
Present - Our special events for Parkinson’s Awareness during April will be shared - in particular the successful fundraising that Sarah and Shannon have done for Parkinson’s research and education.  Future – We will discuss with you, what your expectations are from our support group; and what you would like for in the future of our group. 

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Parkinson's Disease Postage Stamp


May 2nd through May 23rd, 2010
FUND RAISING EVENT
Event: 2nd Annual CPSG Parkinson’s Disease TULIP Campaign

Help support Parkinson’s Research & Education. The Columbia Parkinson’s Support Group and Columbia/Irmo Kroger food stores are partnering for the  2nd Annual CPSG Parkinson’s Disease TULIP Campaign.

From May 2nd through May 23rd Kroger stores in the midlands area will provide their customers with an opportunity to donate $1.00 or more to Parkinson's research and education, whenever they check-out at one of the following four participating Kroger stores: 

In Columbia --- 10136 Two Notch Road --- 3403 Forest Drive --- 817 St. Andrews Road

In Irmo --- 7467 St. Andrews Road

Customers can donate and write their names on the paper TULIP tags.  The store will record the donation and display the tag showing their support of Parkinson’s Research and Education.If you don’t see the TULIP tags at any of the Kroger stores listed above, ask your cashier or ask at the Courtesy Desk, and tell them that you want to donate to the CPSG Parkinson’s Disease TULIP Campaign.

Tell your family, friends, neighbors, and everyone to LOOK FOR THE TULIPS and PLEASE DONATE! at your local midlands Kroger stores listed above. Thank you Kroger Company for providing this fund raising opportunity!

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May 15, 2010
FUND RAISING EVENT
Event: 2nd Annual PAR for Parkinson's Golf Tournament

Where: The Golf Club at Cedar Creek in Aiken, SC.  
What: Play will be Captain's Choice with teams of 4. 
Cost: Entry fee will be $75 per person which includes cart, 18 holes, breakfast and lunch. 
Why: All proceeds will benefit the NPF Center of Excellence at MCG.  This year's goal is to register 120 golfers and raise $10,000!   
Contact: Mike Benko at 803-641-2237

More information and registration forms are available at http://parforparkinson.weebly.com

Note: Business and hole sponsorships are currently being sought.

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May 16, 2010
MEETING

Picture of Red Parkinson Tulip

Topic: "Building or Updating Your Home for Accessibility"

Speaker: Catherine Leigh Graham, MEBME - Rehabilitation Engineer with USC - School of Medicine and Interagency Office of Disability and Health

Contact Info:
Phone: (803) 434-3189
Email: Catherine.Graham@uscmed.sc.edu
Web: www.sciodh.com

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May 21, 2010
SEMINAR
Seminar: 9th Annual Parkinson's Disease Seminar in Augusta

The MCGHealth Neuroscience Center Movement Disorders Program, a recognized Center of Excellence by the National Parkinson Foundation, invites everyone with Parkinson’s Disease, their family and friends to the 9th Annual Parkinson Disease Seminar.Date: May 21, 2010
Time: 9 a.m. to 12 p.m.
Location: Doubletree Hotel Augusta - 2651 Perimeter Parkway - Augusta, GA 30909
Note: Special Doubletree Hotel rate for MCG at $119 a night. 
Cost: FREEThe seminar is open to patients, families and everyone interested in learning more about Parkinson’s Disease. This year’s topics include:+ Thoughts about Parkinson's Disease from a Doctor and a Daughter - Dr. Theresa Zesiewicz, University of South Florida

+ How to Diagnose Parkinson’s Disease and Differentiate it from Look-Alikes - Dr. John Morgan, MCG

+ Medical Treatment of Parkinson’s Disease - Dr. Shyamal Mehta, MCGRegister early for this FREE seminar by calling Amanda Stefanakos, Outreach Coordinator for the Movement Disorders Program, at 706-721-4895 or email astefanakos@mcg.edu

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June 2010
NO MEETING
Picture of Red Parkinson Tulip
NO SUPPORT GROUP MEETING - SUMMER VACATION
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Picture of beach scene with umbrella

June 5, 2010
SYMPOSIUM
Event: Victory Summit Symposium

WHAT: Join the Davis Phinney Foundation and the Parkinson Association of the Carolinas partners for a moving day of information and inspiration. The Victory Summit TM is a national series of symposia that focuses on the things people can do today to improve the quality of their lives – from the latest research and treatment to demonstrations of different exercises and other activities. Featuring researchers, clinicians and physical therapists in the field of movement disorders, the Victory Summit provides a range of tools and options that people with Parkinson’s can use to live well today.

Date: Saturday, June 5, 2010
Location: Charlotte Convention Center - 501 South College Street - Charlotte, NC 28202
Note: Special room rate of $99 per night at the Hilton Charlotte Center City hotel (connected to the
Convention Center). Please call 877-667-7213 and ask for the Davis Phinney Foundation Victory Summit
group rate.

This event is free of charge to all attendees and includes breakfast, lunch, program materials and valet parking.
Seating is limited – register online at www.davisphinneyfoundation.org or call 1-877-274-7673

CONTACT: For more details, please visit www.davisphinneyfoundation.org

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July 18, 2010
MEETING
Picture of Red Parkinson Tulip
Topic: "I Just Wanna Dance" – A short film (12 minutes) by film maker Jim Harry about Parkinson's and the decision by a patient with severe dyskinesia to have DBS (Deep Brain Stimulation) surgery.

After the film there will be a panel of 4 couples (patient + caregiver) who have gone through the DBS surgical procedure. These couples represent the different periods in DBS surgery history - from the very early days of the introduction of DBS surgery through the present day.

Meeting attendees will have the opportunity to discuss and ask questions of any member of the panel pertaining to DBS surgery.

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August 15, 2010
MEETING

Picture of Red Parkinson Tulip
Topic: Who do you call?

Speaker: We are hosting a variety of vendors and businesses at our meeting, who provide products and services for those with disabilities and/or Parkinson's disease.
Laugh With Nancy Theracycle Right At Home - Jenny Barber
Lt. Governor's Office on Aging Body Maintenance - Licensed Massage Therapy Uni Health Post Acute Care
Forest Drive Travel Agency Carolina Healthcare Solutions Palmetto Health HAPI Program
Presbyterian Homes VA and Paralyzed Veterans of America Long's Drugs
Kehoe Constructor Multiple Pharmaceutical Representatives Parkinson's Disease Resource Table
Please contact Jenny Barber for more information -- Email  jbarber3@sc.rr.com  --  Phone  (803) 807-0560

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September 14, 2010
EVENT
Event: "Right At Home" Presents - "Who Do You Ask" - A comprehensive resource event for people caring for their elderly parents and loved ones. Let "Right at Home" navigate you through the home care maze by bringing together a broad coalition of services to offer choices and solutions to promote independence, security and healthcare options.
There will be guest speakers throughout the event, including Dale Hamrick, MD, Capt. John Edwards, Janet Halady Three Rivers Behavioral Health, Adelle Stanley Alzheimer’s Assoc.Date:  Tuesday September 14th
Time:  4pm to 7pm
Where:  Brookland Baptist Conference Center - 1066 Sunset Blvd, West Columbia For more information: Call 803 551 4004

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September 19, 2010
MEETING

Picture of Red Parkinson Tulip
Topic: "Foot Care - Services covered by Medicare"   How to care for your feet at home.  This topic is usually not discussed very much, but Parkinson patients have problems walking, and because of this have problems with their feet. 

Speaker: Dr. Paul Bearden, R DPM
Lexington Foot Clinic
1207 N Lake Dr, Lexington, SC 29072

For more information: Call (803) 359-5435

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October 1, 2010

SYMPOSIUM
Symposium --- The 5th Parkinson Symposium is coming to Columbia, SC Again!  Meeting the Challenges of Parkinson's - A symposium for Patients & Caregivers

Sponsored By: Palmetto Health HomeCare, Hospice, Private Services, & Palliative Care


Date: October 1, 2010
Sponsored By:
Palmetto Health Care
Topics: 
Meeting Everyday Parkinson's Challenges - Meeting the Challenges of Parkinson's Medication Management - Parkinson's Disease and Driving
Where:  Palmetto Health Baptist Medical Center Auditorium - 1501 Sumter Street - Columbia, SC --- This is the same symposium that was to be held at Brookland Baptist Church, the location has changed.
Register:  Call Palmetto Heal CareCall at 803-296-2273
Register Early:  Complimentary lunch will be available for those who register by September 27th
Time:  Registration time is 9:00 am - 9:30 am -and- Symposium 9:30 am - 2:00 pm
Fee:  FREE
Parking:  We suggest that you arrive early, to give yourself enough time to park in the parking garageGoogle Map Link:  http://tinyurl.com/2vn6cr9

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October 15-17, 2010
CONFERENCE
Conference: Southeastern Parkinson Disease Conference (SPDC) and Young Onset Conference Date:  October 15 – 17, 2010
Fee:  $79 which includes admission to conference events, Friday night Reception; Saturday Breakfast, Lunch, & Dinner; and Sunday Breakfast and Lunch.  Click Here for additional information and online registration. This event is sponsored by the Georgia Parkinson's Association www.gaparkinsons.org

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October 17, 2010
MEETING

Picture of Red Parkinson Tulip
Topic: OPEN FORUM & DISCUSSION

Subject: To be determined

For our open forum meetings we usually start with a theme or topic and go from there. Our members have an opportunity to share their own experiences; ask questions of each other; and help each other by proving solutions that they have for various issues, concerns, problems, etc.  At the open forum meetings, our members tell us they learn about things that they can't find in anywhere else, because they are learning directly from other Parkinson patients and their caregivers.

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October 21 – October 23, 2010
WORKSHOP/TRAINING
Workshop/Training: 2010 CLINICAL RESEARCH LEARNING INSTITUTE  Date: Thursday, October 21 - Saturday, October 23
Hamilton Park Hotel & Conference Center
Florham Park, NJ

For more information visit
www.pdf.org/en/crli
The Clinical Research Learning Institute is an annual multi-day training for people living with Parkinson’s disease (PD) that prepares participants to serve as advocates within the clinical research enterprise.Following the Learning Institute, the Parkinson’s Disease Foundation (PDF) will engage graduates by providing continuing education programs, identifying community outreach opportunities and facilitating interaction and sharing of best practices among all graduates.Space is limited. To be eligible, an applicant must be a person with Parkinson’s disease, living in either the US or Puerto Rico.  Expenses (registration, travel, hotel accommodations, meals, etc.) for successful applicants to the Clinical Research Learning Institute will covered by PDF.If you are interested in applying to 2010 Clinical Research Learning Institute, please complete the application packet CLICK HERE (type or print) and return it via mail, email or fax by Friday, August 27, 2010 to: Ronnie Todaro, M.P.H.

Director of National Programs
Parkinson’s Disease Foundation
1359 Broadway, Suite 1509
New York, New York 10018
Phone: (800) 457-6676/ (212) 923-4700, ext. #7641 /Fax: (212) 923-4778
rtodaro@pdf.orgThe deadline for submitting an application for the Clinical Research Learning Institute is Friday, August 27, 2010. Successful applicants will be notified about their selection by Friday, September 10, 2010.

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November 12, 20101
SEMINAR
Seminar: Parkinson’s Disease 101:  An Introduction
Sponsored by: Duke
University Movement Disorders Center
Date: November 12, 2010 - Friday,
Time:
2:15– 4:00 PM
Where:
Millennium Hotel - The Alumni Room - 2800 Campus Walk Avenue, Durham, NC  27705

This class is designed for the newly diagnosed individual and their loved one.  The afternoon will be filled with information about Parkinson ’s disease and resources.  Registration is limited to 25 participants. 

The fee is $10.00 per person, payable to Duke University/PD 101, and includes lunch.

To register, please contact Arlene D’Alli, MSW, LCSW at 932 Morreene Rd., Durham, NC  27705
Phone 919-684-5128 - Email arlene.dalli@duke.edu

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November 13, 2010
CONFERENCE
Conference: The Many Facets of Caregiving
A Conference for caregivers presented by: Caregiver Coalition of the Midlands - 1505 Blanding Street - Columbia, SC

This FREE Caregiver's Conference is designed to provide a variety of informative caregiver management and coping skills. Information will be provided by caregiver professionals and time will be allotted to allow participants to share experiences with each other.

Date: November 13, 2010 - Saturday
Time: 8:30 am - 3:00 pm
Location: Riverbanks Zoo and Gardens
Registration: Call 803-296-5978
Cost: FREE!

To arrange respite care for your loved one during the conference, please contact: Central Midlands Family Caregiver Support Program 803-376-5390

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November 13, 20101
FUND RAISING EVENT
Event: The 11th Annual CSRA Parkinson Walk
Date: Saturday, November 13, 2010
We invite you to join us at the Family Y outdoor track at 3570 Wheeler Road in Augusta to help our fight against Parkinson's Disease.  Funds raised through our Walk are used for Parkinson's research, quality of life programs, patient support and education. 

For more information and to register your team, please call 706-364-1662 or email parkinsoncsra@comcast.net

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November 21, 2010
MEETING
Picture of Red Parkinson Tulip

Speaker: Dr. Dale Hamrick, Geriatric Care and Parkinson's Disease specialist

Topic: Dr. Hamrick will share information from a recent Movement Disorder Society conference at Duke. Followed by audience question and answer period on Parkinson topics.
Dr. Hamrick is an Internist/Geriatrician/Parkinson's disease specialist in Columbia who makes house calls only (no office visits). He is also a member of our Board of Directors as a medical advisor.

Email
: drhamrickmd@gmail.com
Phone: 803-462-0376


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December 7, 2010
EVENT / PRESENTATION
Event/Presentation: Building or Updating Your Home for Accessibility - Late Breaking News Event!!!!

Note: We recommend this presentation. A similar presentation was made at our May 16, 2010 meeting and it was found to be very useful for anyone with disabilities and/or seniors.Registration information is at the end of this message.

Date
: Tuesday, December 7, 2010
Time: 6:00pm – 8:00pm
Location:
2nd Floor Conference Room,
Family Practice Center
Interagency Office of Disability and Health
3209 Colonial Drive
Columbia, SC 29203
Cost: Free

Directions and a map are provided for Family Medicine
(PDF)

Note about parking:
Parking is in the chain link fenced area adjacent to the building.  Conference room is on the second floor.  It is the only room you can enter without a pass card and is on your left when you come off the elevator.  (On your right if you come up the stairs).

Presenters:

Wesley Farnum, CAPS, owner of MyHome Builders, LLC
Catherine Leigh Graham, MEMBE, Interagency Office of Disability and Health, USC School of Medicine

Description
: Wesley and Catherine will discuss a variety of home design features that can improve accessibility for people with disabilities or those wishing to remain in their homes as they age. The design features covered are common to all homes and are available without sacrificing aesthetics and style. The objective of this seminar is to educate participants on design, features and products that can make a home more accessible and enjoyable. Before and after pictures will illustrate options. Listed below are a few of the topics that will be discussed:
  • Exterior features for accessibility and curb appeal
  • Kitchen design
  • Electrical items for safety and comfort
  • Bath and shower design and products
  • Flooring that works
  • Funding options
After the presentation is completed, the presenters will be available for one-on-one questions.More about the presenters: Wesley is a local builder and business owner and a Certified Aging in Place Specialist. Catherine is a rehabilitation engineer who has been a wheelchair user for over 20 years. They, in conjunction with the SC Assistive Technology Program, are offering this free seminar.To register for this workshop:

December 19, 2010
MEETING
Picture of Red Parkinson Tulip
Join Us For Our Annual Christmas / Holiday Party
Entertainment and Refreshments will be provided


We will be having live entertainment by Bob Michalski, who plays a wide variety of contemporary and jazz instrumental selections. Bob has appeared in many locations around Columbia, including churches, weddings, and corporate events. Visit HERE to hear a short sample of Bob's dinner music.

For several samples of Bob's wide variety music CLICK HERE - Be sure to click on the playlist titles in the right-hand box.

WIS TV recognized Bob in December, 2007 for his volunteer work with music therapy. To see the WIS TV videos CLICK HERE ~~ scroll down the page to find the WIS videos.

Email: reedman@bellsouth.net
Phone: 803-315-8353
Website: http://www.bobthesaxplayer.com/

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Photo of Bob Michalski playing his saxaphone

Back by popular demand!
Bob Michalski

What is a PODCAST? A podcast is a series of digital media files, either audio or video, that is released and downloaded through web syndication. The mode of delivery is what differentiates podcasts from other ways of accessing media files over the Internet. New files can thus be downloaded automatically by the podcatcher and stored locally on the user's computer or other device for offline use, giving simpler access to content. Like the term broadcast, podcast can refer either to an ongoing series or episodes of a particular program.

What is a WEBCAST? A webcast is a media file distributed over the Internet using streaming media technology. A webcast may either be distributed live or on demand. Essentially, webcasting is “broadcasting” over the Internet.

What is a WEBINAR? A webinar is a specific type of web conference. It is typically one-way, from the speaker to the audience with limited audience interaction, such as in a webcast. A webinar can be collaborative, and include polling and question & answer sessions to allow full participation between the audience and the presenter.

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